Almost here……

So nearly four years on and my book is finally here.  Not launched yet, but we are now just a few days away.  Just a few tweaks to the distribution and then we’re off!

Today I went to the publishers to collect some copies ready for The Fertility Show and as Zac was off school poorly today, I had to take him along with me for the drive.  Somehow, it was meant to be that he should have a high temperature and be off school today.  Afterall, if he hadn’t been such a wonderful, beautiful boy, that meant the world to us, we would never have been on this crazy journey in the first place.  It felt like a nice full circle closing, (though of course grumpy pants didn’t think so and is actually all rather bored of ‘mummy’s flippin book’ at the moment!)

I’ve seen a draft version in print before and that was a thrilling moment and it was exciting to tear open a box with Jason and give him the first official copy – note to self, he’s not paid me yet!.  But perhaps the real ‘WOW’ moment for me today was seeing a stack of the books in the warehouse and the first palette all boxed up.  This was more than ‘my book’ it was a bloody great big pile of books all ready to be dispatched to anyone who wants to read it, all over the world.  My stomach lurched and it really was a moment to remember!  “Bloody Hell!”

Getting a book published had been on my Bucket List for a long long time.  It’s almost unbelievable and too much to take in to realise it can now be crossed off!  But this last couple of years has turned into much, much more than just trying to tick off an entry on my Bucket List.  It’s become less about my story and more about the story of Secondary Infertility.  Two words that I had never even heard off when I first added ‘book published’ on my Bucket List.  Two words I’d never heard off when I started, and ended, my fertility treatment.  Two little but significant words that changed my life forever.

Of course I’m excited about getting the book finally published, holding it, seeing what it actually looks like after all these years in the planning.  With regards people reading it however, I’m really quite nervous about looking into the whites of people’s eyes that I know, after they have read it, knowing they will have seen into the depths of my heart and soul  – it’s quite a frightening thought in someways.  The obvious excitement is also tinged with a little anxiety!

Yet truly, the most thrilling prospect today is sitting back at my desk and seeing all the feedback on Twitter and Facebook from couples (mostly girls) who want to read the story and who I know will feel comfort and understanding.  They are the ones it was written for.  They are the ones I imagined each night as I tapped away.  I wrote 102,000 words detailing our story but really I just wanted to say “you are not alone, you should not feel guilty, it’s OK to want another baby” over and over and over again – perhaps 102,000 times!  Yet that book wouldn’t have sold for sure, and writing about our most intimate moments and thoughts, seemed to be potentially a more interesting read.  We’ll certainly find out over the next few months!…….

So my excitement tonight is a little premature.  This is a personal achievement for me for sure but it’s not really crossing the finish line until the book is in the hands of someone who it was written for, who needs it, who will benefit from it.  When they put it down and sigh saying “I finally feel understood” and toast that freedom with a large G&T then I will really be able to WHOOP WHOOP!

To remind myself of the very last paragraph in the book:

And finally thank you to the publisher who turned me down and said “There isn’t a market for this book.” You lit a touch paper in me I never knew existed and prompted me to prove you wrong. There is unfortunately a huge market of couples across the world that will sadly appreciate, buy and benefit from this book and it is my intention to reach them. They may not know it yet, they may be unaware of the name of their condition, but without your rejection it would never have been my mission to tell them.

What I really wanted to finish that paragraph with was FUCK YOU!!  #fingersalute

 

 

Secondary Infertility Matters

“Can I please share your fertility story?”

Secondary Infertility MattersSo much has happened in the last week, I honestly feel exhausted.  After working till the early hours for weeks on end, last Thursday my new website finally went live.  It was supposed to launch today, just a day before National Fertility Week UK, but after Fertility Network UK launched my films on their YouTube channel and Hull IVF Unit released their press release about their new campaign #DareToShare that featured a quote from myself, I had to rush the launch through in case the web address featured.

At the same time as amending PayPal coding and proof reading my pages I was racing too and from the IVF Unit juggling interviews with Viking FM, KCFM and ITV Calendar News!  After weeks of preparation it was all over and done in a flash and I was talking about the new site staring down the camera of the regional news!

But it was all good.  It was all hugely positive and just one of many steps towards raising the profile of Secondary Infertility.  So far, I’ve not personally promoted the website just yet, I’ll be putting it on my Facebook page later tonight, but already, just from promoting the YouTube film the feedback has been fantastic.   As I write, the video has been shared 17 times by my friends and family, how terrific is that?!

One asked: “Is it OK to share?” which was lovely as I’m a stickler for Facebook etiquette and respecting privacy but I was like “hell yeh! share away as much as you can, that’s why I’m doing it!”

The response in their comments has also been fabulous and very rewarding, though it has actually got me thinking ‘why on earth have I taken all this on after the life we’ve put ourselves through the last 5 years?’  I’m still wondering now TBH.  But, what I do know, when I’m not trying to analyse myself, is that it’s the most natural instinct in me right now, behind my family.

I don’t think you ever forget an experience that took you to the brink.  That was Primary then Secondary Infertility for me.

I don’t ever think you forget a comment that stung you.  That was the reply from a publisher who said there wasn’t market for SI books because people didn’t search for them on Amazon for me.

I don’t think you can forget other people who are trapped in horrid position you have been fortunate to have escaped.  They are those still trying for a second child feeling guilty and alone.

Two words people have used a lot over recent days have been brave and inspiring.  They make me very proud but I’ve never felt brave, I certainly don’t mind sharing my story because I know the huge value it has compared to any embarrassment I may have.  Inspiring is an interesting word as it generally means you encourage others to do the same – I hope I do.

If more people who have suffered Secondary Infertility, or even Primary Infertility shared their stories highlighting the pain, the background to the treatment, their coping mechanisms, their successes or how they handle failure, the more people will feel comfortable if they are suffering. We who have been through it must share our experience to ‘normalise’ and ‘de-stigmatise’ fertility treatment.

I hope this feedback continues to grow as promotion of the website, Youtube channel and Facebook page start to grow over forthcoming months.

There was one comment however that could have stopped me in my tracks and say “job done”.

It was from a girl in Pennsylvania who messaged me to say “Thank you for sharing your video. As I sit in my car crying, it was so comforting to know that I’m not alone. Thank you”  I know how much it meant to her because there was many I time I too had been sat alone crying.  I remember the very first time I identified with Secondary Infertility – it was so so utterly refreshing to recognised the situation I was in and know it had a name, I was part of a group of people, and realise it wasn’t just me!

Whilst I wish there was no more ‘girls in Pennsylvania’, I know there are hundreds we need to reach, so again, I say in answer to your question: “Hell Yeh!  You share the ass off my story and let’s do this together!”

 

Progress? I’m not sure

So what’s happening?  Well this all started with writing down my journey to help another couple faced with SI.  Then it became about achieving an ambition to have a book published which then turned into a mission to demonstrate to publishers just how big an audience is out there needing information on this topic.

It is now a crusade.  Having spent 2 years (whilst setting up a new business and running a family home) doing my bit to raise the profile of SI, I’m feel we’ve taken one step forward and two steps back.

So yesterday it was finally confirmed that SI would not feature at the Fertility Show in November because ‘it didn’t fit in’.  I was gutted.  We have recently determined that statistic that 1 in 3 of the 1 in 6 couples struggling with fertility already have a child – that’s 1 in 18 with Secondary Infertility.  It’s great to now know this stat, but it’s frustrating that people still don’t recognise the condition to give it focus.  It’s easy for them to say “Secondary Infertility is important” but still they don’t give it the attention and exposure it deserves and as a consequence the condition remains in the dark, as do sufferers.

My first problem with SI was simply that I didn’t know the name existed.  If we could just shout the name out from the rooftops more sufferers would become engaged.  If we could get them to identify with their own situation they would know where to seek more help.  That would be a huge start.

If we could help treatment providers and support networks to learn how to deal with SI sufferers and their unique situation it would help make SI “fit in” and therefore provide the appropriate information and support in clinics.

My messages are simple

Secondary Infertility is still Infertility

Sufferers are not alone, should not feel guilty and are not greedy

There are unique and specific challenges that need to be addressed for sufferers

More people in the Infertility profession need to recognise the condition

Communication and awareness must be improved

Next month I will be launching a brand new website with information and support specifically for SI sufferers.  A brand new online support and information portal that is UK based.  We may have not made it to the show in 2016 but boy oh boy, 2017 here we come!!…….

So near and yet so far

In the six hours since the MLTG page went live on the world wide web, it already has 50 likes, 14 shares and I have 4 orders for my book!  How cool is that?  And yet it is the 3 comments made on the page that mean the most.  Sitting for hundreds of hours pouring my heart out into the laptop, often felt like the loneliest place on the planet.  I will never forget the moment I read a paragraph in Zita West’s Guide to IVF (bible) that mentioned existing parents often had a feeling of guilt.  At last somebody understood.  That was me!  I was shocked as I read the words but I was also immensely comforted.  I’ll also remember the shock at learning that our situation actually had a name ‘Secondary Infertility’. At last I felt ‘defined’, part of a group and suddenly not so alone.  To receive feedback today from 3 people who are currently in a similar situation and have thanked me for sharing my story is one of the strangest feelings I have ever felt.  In the words of one: “I honestly can’t relate to that enough.  You have captured how I’m sure a million women feel.  At a daunting yet exciting time this had given me so much positivity for the future.”  I have always dreamed of getting this book published but tonight, this means more to me than any Amazon listing.  I know how she feels, she now feels understood.  She doesn’t feel so alone and I hope she can start to shake off a little of the guilt she has been carrying round.  Yet I feel sad that despite launching on the world wide web, this friend lives just 10 minutes away.  We live so near, yet when you are struggling alone, we live so far away.  Let’s talk more.  Let’s share more.  Let’s drop the shame. x

Bravely does it…

So here I am finally getting ready to make my site go live and this feels like the scariest thing I have done in my life!

This book has taken three years to write and it is strange to think that I started to write before I even knew the term ‘secondary infertility’ existed. In fact, I started whilst going through our first cycle so that was even before I had any reason to think I would need a term to describe our situation!

I am pretty sure that had I known about our journey and the four attempts before I started the IVF treatment, I’m not sure I would have ever taken the first step. It was a daunting experience but one I embarked on fully expecting to get pregnant first time. I hadn’t anticipated the darker side of failed attempts. Looking back, whilst this was naive, it was also my saviour, for it made me get on with the treatment and have a go. It was a long, painful journey that would not have been so easy to start had I known all that I was in for over the next 14 months.

And yet, sat here now, about to launch my blog and launch my Facebook page, this feels like the scariest journey I have ever made in my life.

Sharing my thoughts, our most intimate moments, not to mention my possible grammatical errors, all seems pretty daunting.

And then I remember that couple on the sofa that have been in my thoughts whilst writing every chapter. Somebody, somewhere, feels guilty for wanting another child and ashamed that they feel so desperate for a child when they know they are blessed to already have one, or more.

They are my saviour right now. For if sharing our story can convince just one couple that it’s alright to feel the want for more children, that you’re not greedy and you should not feel guilty, then that is all the motivation I need to press ‘go live’. It doesn’t feel so scary afterall.